Learning to Breathe
Published by Athena Flicek on Apr 10, 2024
I could feel my blood pressure rising. You might wonder if I was about to run a race or perform a medical miracle. All I was doing was sitting atRead full post…
PFD Story- Baking with the Besties
Published by Christina Van Ditto on Mar 28, 2024
As parents of children with medical complexities and special needs, we parent as clinicians. We are responsible for care and carryover that often resembles a therapeutic and medical model. WhenRead full post…
Insider insights: Preparing for your child’s G-tube journey
Published by Feeding Matters on Feb 26, 2024
What to expect before and after your child’s G-tube insertion So, you’ve finally decided to get a G-tube for your child. Arriving at this point in your child’s feeding journeyRead full post…
A story of triumph over pediatric feeding disorder
Published by Feeding Matters on Feb 15, 2024
The way pediatric feeding disorder (PFD) manifests in each child is as varied as the children themselves. But so many stories of parenting children with PFD are the same. AnRead full post…
MY PFD JOURNEY: JAX
Published by Amber Mieras, Family Advisory Council Chair on Feb 14, 2024
Meet Amber and Jax Mieras. Amber is the Pillar Chair for Family Support and is also the devoted mother to nine-year-old Jax, who has Down syndrome. We invite you toRead full post…
Behind the headlines: Exploring the complex world of tongue tie releases and pediatric feeding disorder
Published by Feeding Matters on Jan 29, 2024
A tongue tie release procedure (frenectomy or frenotomy) is increasingly prevalent among children with pediatric feeding disorder (PFD) that the majority of them have had it, or their parents atRead full post…
My PFD Story: Georgio
Published by Gia Licata & Nicholas Matthews on Dec 19, 2023
We tried for over a year to get pregnant and we couldn’t have been happier when we found out I finally was. After many loses, medications, and tears.. our miracleRead full post…
My PFD Story: Ashley
Published by Ashley Collier on
My daughter was a 33-week preemie and hated to be fed. We were discharged from the NICU without reliable feeds and tried to outrun a feeding tube for years. SheRead full post…
My PFD Journey: Jax
Published by Amber Mieras, Family Advisory Council Chair on Dec 07, 2023
Meet Amber and Jax Mieras. Amber is the Pillar Chair for Family Support and is also the devoted mother to nine-year-old Jax, who has Down syndrome. We invite you toRead full post…
A case for giving: Why gifts to Feeding Matters matter
Published by Feeding Matters on Nov 27, 2023
Feeding Matters is the only organization where education, advocacy and support for pediatric feeding disorder (PFD) is our passion and purpose. In this season of nonprofit giving, one supporter explainsRead full post…
Walking the Path of PFD
Published by Jaclyn Pederson, MHI on Oct 19, 2023
October holds a special place in my heart. Professionally, it’s the birthdate of the pediatric feeding disorder (PFD) diagnosis in the US (PFD turned two this year!). And personally, it’sRead full post…
Overturning insurance denials for PFD
Published by Feeding Matters on Sep 20, 2023
One mom with insider insurance experience shares how she managed to get coverage, plus a sample call script and an appeal template. Navigating insurance coverage for pediatric feeding disorder (PFD)Read full post…
Back to school with PFD: Tips for the new school year from preschool to high school and beyond
Published by Feeding Matters on Aug 16, 2023
When you spend hours every day feeding your child and running to therapy and medical appointments, starting school can seem daunting. Whether it’s at age 3 or later, there comesRead full post…
Hoping for Magic
Published by Anna Taylor on Aug 07, 2023
I didn’t fly to Orange County for the magic of Disney. I flew there in hopes of a magic feeding therapy wand. The truth is, when your child has pediatricRead full post…
A mother’s journey with PFD shines a light on research
Published by By Hayley Estrem, PhD, RN, Assistant professor at UNCW on Jul 21, 2023
I clearly remember the day a doctor’s news changed my life. After months of chasing my baby around with a bottle to eat an ounce at a time, I learnedRead full post…
Supporting Parents: You are not alone
Published by Erin, Parent and Family Coach on Jul 19, 2023
It’s an experience many women have: first, miscarriages. Then, joyfully, delicately, pregnant again. Then, complications throughout the pregnancy. The emotions are overwhelming every moment of every day for months. Then,Read full post…